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Success with Prolia?

Osteoporosis & Bone Health | Last Active: Jan 11 1:02pm | Replies (128)

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@fearfracture

My lumbar t-scores

July 2019, age 50, -3.9
July 2021, age 52, -3.7
December 2022, age 53, -3.6

I also have Hashimoto's thyroiditis which caused hypothyroidism. Was diagnosed with this in 2017, age 48, and I take 75 mcg of levothyroxine daily for this.

For my osteoporosis, at my endocrinologist's recommendation, I took alendronate from January 2020 to July 2021, and quit taking it because it was causing digestive tract issues. Then my endocrinologist pushed me to have a zoledronic acid infusion, he told me my bones were "horrible" and not knowing what else to do, I had the infusion in November 2021.

After having the infusion, I started doing my own research and discovered that my endocrinologist wasn't doing what he should have done. He hadn't ordered any tests to rule out secondary causes and he had never even looked at my full DEXA reports. All he was basing his decisions on was my DEXA summaries.

When I finally got my hands on my complete DEXA reports from July 2019 and July 2021, I discovered that the "big gain" in my left hip was really a big gain, it appears to be an error in my July 2019 report that made my left hip look worse than it actually was.

My endocrinologist expected me to have another zoledronic acid infusion this past November, but I have put it off. I need to find a doctor who can actually tell me what my bone turnover marker tests mean before I take any more osteoporosis meds. All the reading I have done on this topic is making me think that my hypothyroidism is what is effecting my bones.

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Replies to "My lumbar t-scores July 2019, age 50, -3.9 July 2021, age 52, -3.7 December 2022, age..."

@fearfracture my question is why your doc didn't suggest Tymlos, Forteo or Evenity with those scores. Those meds build bone.

I agree that docs focus on the osteoporosis which may be a symptom and not the cause. Have they checked you parathyroid ?