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Bland embolization or transarterial chemoembolization (TACE)

Neuroendocrine Tumors (NETs) | Last Active: Feb 7, 2023 | Replies (22)
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@hopeful33250

Hello @roseflame and welcome to Mayo Connect. I appreciate you sharing your journey with NETs. You do not mention having symptoms of carcinoid syndrome but I'm wondering if this is a problem for you?

If you are comfortable sharing more, when did you begin the Lanreotide? Will you be having more scans during the next few months to see if the injections are helping?

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Replies to "Hello @roseflame and welcome to Mayo Connect. I appreciate you sharing your journey with NETs. You..."
roseflame | @roseflame | Jan 12, 2023

Hi Teresa, Thank you for your interest. One problem that delayed diagnosis of the tumor (for 2 years!)was that I have never had any symptoms; even the urine test for carcinoid syndrome was negative.

I just had my second shot; I’m scheduled for another January 31, then one on February 28 (will be the 4th shot); that day I’m scheduled for my second PET, and the doctor says he “expects to see no growth if not shrinkage” of the existing lesions.

I’m praying he is right and that the Lanreotide will work its magic. I will surely keep you updated. This group has been so helpful in lifting my spirits.

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