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DiscussionBreast cancer spread to liver, skull, spine, ribs, hips etc.
Breast Cancer | Last Active: May 13, 2023 | Replies (67)Comment receiving replies
Replies to "I am in your same situation. I gave liver, bone d sad bd lymph node Mets...."
I too am 72, living with stage 4 metastatic BC for 11 years now (46 years since original mastectomy) I was on Letrazole for 10 years with minimal side effects (mild neuropathy & fatigue) keeping the spread to my bones (sternum) at bay. I went off for a few months and next scan showed spread to liver, ribs spine & scull.
So now I am on Ibrance, gabapentin and discussing Xgeva instead of Fosamax. I have used medical marijuana since it was legal in Oregon (and now in the state where I currently live) and sporadically for fifty years. I’d be lost without it.
I have managed to stay away from any major chemotherapy and avoid opioid pain killers (except for a few days after breaking my shoulder).
I’ve kind of gone on, but I’ve a number of years dealing with this: YOU HAVE TO BE YOUR OWN ADVOCATE! Question your doctors and educate yourself. Right now at almost 73 I am making different decisions than in my twenties (I mean at 26 my oncologist suggested I do heavy duty chemo and have a hysterectomy!) I went east to build boats and had my son five years later. I’m a firm believer that “quality of life” doesn’t have to be a trade off to longevity.