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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Feb 6 6:57am | Replies (1506)Comment receiving replies
Thank you @vdouglas! Very kind words! All of these posts help me to get and keep perspective on this crazy MP. Just feeling I am not alone anymore-worth tons of positive regard. I sure find lots of rest is the #1 key for me. Never easy but more so as I age, rest-as a state of mind as much as a physical state is imperative. I really have few evenings that include “plans”. Plans more then feet up and in some comatose state! I have 4 children and 14 grand children and a husband who will never retire but with that in mind—rest is still my first key! A positive, productive, creative state of mind -all good! Having no Doctor I must be my own manager as much as possible, at this point.
Replies to "Thank you @vdouglas! Very kind words! All of these posts help me to get and keep..."
I had stomach pain, aching and sore in a certain spot, plus cramps if I overworked in garden. Went to Dr who finally sent me for a CT scan. It showed a thickening in the mesenteric 7cm X 10cm and through the CT scan diagnosed it as Pannicuitus. After a few months and 2 more CT scans I was referred to Surgeon and had a biopsy through keyhole and the Panniculitus was confirmed. (also...No Lymphoma which they thought it might have been...thankfully) I am 65. Have to go on Predisenole and Tomoxifen for 2 months now.
Hello @nanny23,
Sorry to hear you are still dealing with a lot of digestive issues, that really stinks. With so many problems for so long, have you considered a visit to the Mayo Clinic? Maybe you have already been there I don't know. A lot of the G.I. symptoms are going to be similar and without a really good experienced doctor making the diagnosis it could look like many types of disease. I am not a doctor and I am not saying you don't have it but I would think that If you have had a CT or MRI and had Mesenteric Panniculitis or Sclerosing Mesenteritis to any significant degree it "should" have been mentioned in the report that follows.
My initial pain was very similar to kidney stone pain. Severe right side flank pain that would move to the belly. It was not surface pain but a deep internal pain. Attached is information on the symptoms, http://www.cghjournal.org/article/S1542-3565(07)00224-8/pdf
Please see Table 2 for the symptoms.
What do you think about a Mayo Visit?
@vdouglas
Von
They sent me in to for Lymphoma too.
My symptoms always begin as yours do. At first, the emergency department thought I had kidney stones that may have smashed from the fall I had as the symptoms began exactly two weeks after the said fall. And the deep internal pain (to me) feels like my intestines are ripping apart. But I agree with you. An initial ultrasound showed no evidence of kidney stones, but I was sent immediately for a CT that indicated either lymphoma or MP.
Actually, that is my worry. Two years ago, I was sent to the Cancer centre here to see if I had any markers. I never got a call back (which they told me to take as good news). I'm not sure if I should be checked again (monitored periodically?) or if that test means that I will never have markers for lymphoma?
What is the treatment dose?
Hello @mostafaamin, Welcome back. I hope you doing well. I am not a Doctors but would like to help with any information we can provide. Here is a link to some information. Please let me know if you have problems opening. Please see "Table 4", http://www.cghjournal.org/article/S1542-3565(07)00224-8/pdf
Best regards,
@vdouglas
Von
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Can you please tell me what the symptoms are. I have many issues with my stomach and nothing doctors are doing are helping me. I had a large ulcer healed I have Barrett’s esophagus from GERD. I HAVE COLON POLYPS THAT HAVE TO BE REMIVED EVERY 6 months. I continue to have severe bloating and high stomCh pain on right side which radiates to back and right shoulder. No gall bladder stone detected. I am at wits end and don’t know where to turn anymore. Any advice appreciated. I hope you do well with your treatment for your problem. Just not sure what this entails.