Hi @kimh,

Since you will be seeing your doctor soon, and while we wait for other members to share their insights, I thought you might wish to read this information about Mayo Clinic's approach with regard to MP:
– https://www.mayoclinic.org/diseases-conditions/sclerosing-mesenteritis/care-at-mayo-clinic/mac-20355090

Some of the drugs listed in the above information are tumor necrosis factor (TNF) blockers – they reduce the effects of a substance in the body that can cause inflammation. May I ask if you or your doctors have considered these?