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Success with low dose naltrexone for Autoimmune disorders
Autoimmune Diseases | Last Active: Jan 8 10:21am | Replies (101)Comment receiving replies
@ess77 Thank you Elizabeth for your reply. I should clear up something for you, I apologize if the way I worded the paralysis with Guillian Barre as being paralyzed for 2 years. It was a 2 year recovery from the paralysis. I was in the hospital for 6 weeks at Duke University Hospital and then in my home hospital for another 3 or 4 weeks, then home for outpatient therapy. Guillian Barre' damages your nerves and it takes a long time for them to heal, which is why it took me a couple of years to finally get over this illness. I do still have residual effects from the nerve damage but not severe and consider myself blessed, that I recovered as well as I did. It sounds like you have had a time with your health as well. I will pray for your continued healing and progress toward good health in 2023. I always say, "One day at a time", is the best way to move forward with a grateful heart it is not something worse. Take care of yourself.
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@kkathysan and all... Thank you for your message. I understand the sequence of events better, but you were still dealing with paralyzation and the damage of this disease. I hope you continue to be improved and able to handle the effects as time passes.
I've had multiple illnesses through the years, with most leaving ongoing damage or recurring illness. It's been a struggle, but I'm a determined lady with apparently an inner strength that keeps me fighting. At least that's what my docs say now. I am truly stubborn and won't give up, at times to my detriment.
I'm really exhausted, from life in general and the multitude of daily challenges. I'm determined 2023 will be a better year than last. Last year was truly the worst year of my life, both for me and for my 55-year-old son who's disabled with Dystonia for 20 years. I've pretty beaten up actually, we both are, but I'm getting to the point I'm grateful for every good moment and every good memory he and I can enjoy. They are few. I am a firm believer in the one day or one moment at a time. and have a deep faith God is in control. I just don't want any more lessons, don't want to learn anymore. He and I have had many such conversations. But, life goes on in its own lousy, wonky, horrid at times way.
I don't want to deal with more Sarcoid now. But, it is back so I'll handle it best I can. You've helped me on this site with possible treatment ideas. I'll let you know what my pulmonologist tomorrow tells me and the dermatologist on Thursday. Hope for different treatments with better results. Prednisone helps of course. I was on heavy pred for 8 months when first diagnosed with Sarcoid when I was 40. I do work, but the side effects are a horror for me. I was just on 50 mg for 3 days after visiting the Mayo ED with respiratory infections last month.
I requested the doc limit the days so I got some good effects without too many side effects. It helped me survive the worst of the infection and gave me enough energy to get out of bed. That's a wonder drug, with which I have a love/hate relationship. Hopefully, can avoid it now.
Be well. It's 5 p.m. in sunny, lovely, coldish Flordia. I'm closing down downstairs and heading up to my bed soon. I'm really tired and have a busy Mayo day tomorrow.
Blessings all. Elizabeth