I’m writing hoping to connect with others who have adhesive arachnoiditis. I’m caregiver to my 83 year old mother who has AA. She was diagnosed recently after several MRI’s & many other tests while in the hospital for 10 days. She’s mainly struggling with complete urinary & fecal incontinence, symptoms of peripheral neuropathy, gait abnormality, unexplained weight loss & generalized weakness. She already had an intrathecal pump for pain management of another condition before the diagnosis. We live near Nashville, TN & are having a hard time finding care from a neurologist who has experience with or even knows much about this condition. I will gladly drive her anywhere necessary if anyone has recommendations for a doctor or treatment options that could improve her quality of life. We are reading Dr Forest Tennant’s books trying to learn more about this. Thanks for any help & suggestions.