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Neuroendocrine Tumors (NETs) | Last Active: Apr 17 5:51pm | Replies (384)

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@aliatl

Thank you Colleen. They have done following tests in order below

Xray - saw a mass in lung
Cad Scan - mass in lung , spreads in spine, liver, breast
PETscan - Confirmed the cad scan
MRI of Brain - thankfully all good there.
Biopsy of liver : Neuroendocrine Cancer
Biopsy of breast : result pending
Origin : unknown

Right now we are seeing surgeon oncologist at Emory to review the results . I believe he wants to do a overall MRI. Please send me information on great neuroendocrine oncologist. I've been told best place would be MD Anderson and Mayo. But we don't know any names.

Thank you

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Replies to "Thank you Colleen. They have done following tests in order below Xray - saw a mass..."

Hello @aliatl,

If you would like to consult with a Mayo NET specialist, please use this link to schedule an appointment, http://mayocl.in/1mtmR63. It is not necessary to ask for a particular doctor, as Mayo will find the best physician for you to see. As there are three campuses at Mayo, you can pick the one that is most convenient for you.

How are you dealing with all of this new information?