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Double lumpectomies in same breast

Breast Cancer | Last Active: Oct 10, 2023 | Replies (13)

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I am so sorry you are going through these very frightening times. I, too, had two lesions. The first, invasive ductal cancer, was found at the first lumpectomy. Margins were too close so I was preparing for a second surgery but prior I had asked for MRI breast because I was worried about the other breast. That breast turned out clear, but on the opposite side from my first lesion was noted another tumor so at the second surgery, I underwent partial mastectomies. The second lesion turned out to be a neuroendocrine cancer. Like your sarcomatoid cancer, neuroendocrine is considered highly aggressive but usually starts in colon, liver, or lung. My case was studied through 3 Tumor Boards. One recommendation was to do more chemo which for neuroendocrine would have been the same as oat cell ca of lung which could cause many other problems. I chose not to go through with this but to follow. We were doing every 3-month PET scans which were fine and backed off to every 6 months and now every 9 months but there are some quirky things going on now in the lungs that are being followed...they do not show cancer, just have radiologists stumped for now. I also have a history of bronchiectasis with atelectasis so that could be contributing to the lung issue. My pulmonary doctor also follows the PET scans. Neuroendocrine in the breast is so rare that there is not much research yet. My advice to you is to request Tumor Board presentations which your oncologist can request. Hospital Tumor Boards consist of experts in the various areas that usually meet monthly to discuss difficult or unusual cases. Please let us know how you are doing. Sending best wishes to you in this journey.

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Replies to "@creekgirl I am so sorry you are going through these very frightening times. I, too, had..."

Thank you so much for your comments. I thought having two tumor boards was strange, but I guess the more the better when you need them.

I'll keep you in my prayers. These cancers you and I have may be rare to doctors, but God knows exactly what we need. Thank you again.