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Success with low dose naltrexone for Autoimmune disorders
Autoimmune Diseases | Last Active: Oct 28 9:10am | Replies (109)Comment receiving replies
@gillysmom Thank you for the suggestion. I have never heard of that before. I’m not sure why I have had such a difficult time with fighting off infections my whole life. I can remember as a kid it taking a really long time even getting rid of a cold once I got it. I guess I’ve had a lousy immune system my whole life. When I was 32, I got an infection which I thought was a lingering sinus infection. It was questionably diagnosed as Mono, and quickly developed into Guillian Barré’ Syndrome. That was a 2 year recovery from being paralyzed, and within a year after that I was diagnosed with reactivated Epstein Barre, and Hypothyroidism. I have struggled with EBV ever since. Seems that my immune system just can’t keep it in remission. I’m going to read up on that suggestion of Gamma Globulin. I was very excited about the LDN suggestion, but it’s hard to tell at this point how much it has helped. As I said, I’m only on 2 mg so far. I figured it was worth a try though. Thanks for your reply.
Replies to "@gillysmom Thank you for the suggestion. I have never heard of that before. I’m not sure..."
@kkathysan, @gillysmom, and all...I just sent a message to you folks and remembered something I wanted to mention. I've had the same issues with frequent infections for the last 30+ years, acute and chronic sinus infections with surgery last year to remove a sphenoid infection that wouldn't respond to any treatments, 5 UTI infections last year, one with sepsis and all severe and with blood, kidney, lung, toe, lungs of course...I have a 'lousy' immune and autoimmune system like you. I can't believe you were 2years paralyzed. So sorry. My right arm was paralyzed for several months in my 20s after a tennis ball hit the base of my skull. To this day it gets weak with discomfort when I overdo it. I also had 2 episodes of total paralysis except for my eyes and mouth, thankfully for me, to this day with no diagnosis. I read recently this can occur as a side effect of a med I was taking. Lyrica? Neurontin? don't remember for sure, but I was stunned after reading this as the entire staff at that hospital thought I was trying to get a few days of 'spa-like' treatment! I was insulted and horrified at the thought!
Now have hypothyroidism and other diagnoses. I'm interested in Gamma Globulin infusions. I'm reading on that as well and will report what I find if different. I had IVIG infusions several years ago when misdiagnosed with Myasthenia gravis. Actually, they did help. May be due to vasculitis or ???? Our immune systems are wonky and give the docs a run for it. I'm thrilled with the Mayo diagnoses of several things I've dealt with alone for years.
Kathy, hope you get good results from the LDN. Praying for you and all.
elizabeth
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One more thought about your hypothyroidsm. Your doc needs to exclude Hashmotos, which is an autoimmune cause for thyroiditis. Knowing what is happening within your immune system may help with understanding how one disease impacts the others even when there are no specific treatments available. Two other resources are "Stuff that Works," which is a research support group that can offer help with dealing with EBV flares and treatments and lots of compassionate members, and books written by Medical Medium which many of the group members claim helped to quiet EBV symptoms and thyroid problems. Best wishes for your insight and healng.