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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)
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@lmcintosh

Good morning,
I was just diagnosed with DCIS stage 0. Options Lumpectomy with 4 weeks radiation/meds, I am ER + (with 7% recurrence at 10 yrs) or a mastectomy with (2% lifetime recurrence.) I am concerned about the side effects of the radiation and meds so am leaning toward mastectomy with the better %. I am 53. What are your thoughts on doing a mastectomy on both sides, my right breast is fine but I am concerned of course with it eventually finding this side. Has anyone made this decision? What was your recovery time with the mastectomy and side effects?
Thanks for sharing,
Lisa

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Replies to "Good morning, I was just diagnosed with DCIS stage 0. Options Lumpectomy with 4 weeks radiation/meds,..."
asa13 | @asa13 | Jan 10, 2023

DOUBLE MASTECTOMY. I had DCIS stage 0 in 2012, lumpectomy and radiation. In 2021 again on the same breast. This time mastectomy was indicated and I decided for double. When the pathology came I had and invasive cancer that was never seen in the same breast. So I received 16 chemotherapies. In 2012 I wanted a double mastectomy and I was not allowed because I was so "young", 38. I wish I had done it. Today I am 10 months post chemotherapy. I feel fine but always comes to my mind... what if???? Of course is your decision, but this is my story. Stay strong 🙏

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melomelbee | @melomelbee | Jan 11, 2023

Good morning,
I’m sorry you are going through this. I personally know the feeling.
I was diagnosed with IDC in one breast June 2022. Small tumor, clean lymph nodes.I chose a bilateral mastectomy with reconstruction. I have done so much research and reoccurrence seems to occur with lumpectomy with radiation.
My surgery was 9/13/22 and I have no regrets. My tumor was 95% estrogen and 5%progesterone fed. My oncodx score was 6% reoccurrence in 10 yrs.
I chose not to do AI. There’s too many side effects and don’t want to take on more issues. It is a personal decision and it’s completely up to you and you alone. Don’t feel pressured.
Surgery was painful but you will be surprised on how fast your body heals and recovers.
Let me know if you have any questions. We need to support each other in our journey!
Best of luck!!!

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