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bhinsley (@bhinsley)

Left Flank Pain

Just Want to Talk | Last Active: Feb 16, 2023 | Replies (10)

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Thank you for the response @amandajro ! There are a few things that ring a bell especially with the first article. The reason for my kidney biopsy was the fact last year I started having protein in urine along with blood in urine (both microscopic and macroscopic). They were thinking IgA Nephropathy but the biopsy came back negative. They then put me on blood pressure medication for 3 weeks but that did not help either. They were also thinking a form of Lupus but they is now off the table.

The only lead we have right now is the 4 herniated disks and pinch nerve from my Thoracic MRI. That being said they told me it is "normal wear and tear" which doesn't make me too confident with accepting the referral to the spine specialist. These dead ends are costly and with them saying that it has lead me to explore a second opinion or just giving up and making this my new normal.

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Replies to "Thank you for the response @amandajro ! There are a few things that ring a bell..."

I had been trying desperately to find out what was causing severe pain after sitting or standing or bending down on my left side for the last 20 years, I’ve seen many specialist in Seattle and had a really good PCP till a few years ago, and a Gynecologist, Gastroenterologist, Endocrinologist Cardiologist and Orthopedic. In 2017 I got a CT w Contrast that I was shown to have congested pelvic syndrome and something about the Venous Plexus, and endoscopic exam my GI performed saw that I had SMA, I didn’t have a clue what any of this meant. Then last year I had further problems with a nerve pain on my right leg coming down from my groin all down inside of my leg, scary 😟 I got a MRI that showed I have IFI ( a rare type of hip impingement, so I was seen by a Orthopedic that gave me a guided injection to calm down the nerve pain but the pain got worse with my labrum and hamstring on the left leg and my ischium bone was very painful. More images showed me to have partial tears to labrum and my hamstring and tendenosis of my left side, but I got another guided injection to calm that down so that I could get some PT to strengthen my hips because I am atrophy from waist down, then pain got even worse over Christmas and I had to call an EMT and went to the ER, they discharged me after EMT told them I must have sciatica pain from the back? I was discharged without any exam and told to follow up with my PCP. I then did more research on my own after not getting better and saw something call Nutcracker’s Syndrome, I told my PCP about the awful experience at the ER, then he told me that It was unlikely I could have congested pelvic syndrome because of my age and being in menopause, but I insisted to see a specialist doctor who could prove to him this was not all in my head. I just got confirmation that I have Nutcrackers Syndrome and possible DVT in left leg causing pain