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@bustrbrwn22

@susanh824 thanks so much for responding. I am trying to convince my drs to do this. They are hesitant because of my oral LP, and I understand that. Does anyone ever get any other weird changes in their body from Sjogren’s. For example, the inside of my nose just started to have the symptoms of “falling asleep” like when your arms or legs do. It’s a very weird sensation. Also happening in the same period of time, it feels like the muscle, not sure what to call it, of my inner elbow, knees, where arm and chest meet, bridge of nose, wrists, and opening my hands in the mornings have all started to become very uncomfortable and tight. This happened all of a sudden, all in the period of a couple days. My lips have gradually gotten more numb over 2 years and uncomfortable. They stopped feeling like they were on fire a couple months ago. Doctors just shrug their shoulders when I tell them amount my lips. Does any of this seem like it could be Sjogrens?

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Replies to "@susanh824 thanks so much for responding. I am trying to convince my drs to do this...."

I’m sorry you’re going through all of that. No, it does not sound at all like Sjogren’s Syndrome. I’m afraid you’re dealing with something else. I wish I could tell you what that is.

Labs for all autoimmune diseases and a petscan or brain scan and scan of the spine seem to me to be in order !! I'm so sorry. I know what you mean about the doctors. I get the same thing because I have odd issues going on and I feel like they think I'm faking it.