← Return to Undiagnosed Autoimmune Disease - No one will listen to me

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@3pelican

I just happened to peak in today, not really expecting anything. But when i heard prednizone, wow! That is my experience too! The difference is that my specialist told be to give it a try. I felt like a humannagain for 3 days. That was when he said you have an idiopathic autoimmune disorder. Sadly in stated crawling the walls, so i had to stop. And once again i am on steroids to treat bronchitis following covid. I am not well, but in still feel like a human again. The issue is that this information never gets discussed among my variety of specialists, or it. Gets poo poo ed. I realized this week that im have been hiring carpenters all this time, and they auto see the solution as a hammer and a nail. But over 35 years now, i just get sicker and sicker. I gotta find me a general contractor!

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Replies to "I just happened to peak in today, not really expecting anything. But when i heard prednizone,..."

@3pelican -
Interesting- I had the same experience with Prednisone when I was seeing GI at Mayo for a GI disorder- not yet diagnosed as autoimmune.
I was on prednisone occasionally for asthma, bronchitis etc. I also felt normal for a few days- even losing several lbs water weight.