Welcome @creekgirl. As if being diagnosed with breast cancer wasn't enough, you were diagnosed with 2 different kinds of breast tumors in one breast! I can imagine that you feel untethered and like you're walking alone in the wilderness.
Like you, @trixie1313 has also had 2 different types of breast cancer, with 3 tumors in one breast. While she didn't have sarcomatoid carcinoma, I think she can relate to how you're feeling and the impact of such a confusing diagnosis.
Sarcomatoid carcinoma is sometimes referred to as pleomorphic carcinoma. @timely and @ilcpfightee have mentioned having pleomorphic lobular carcinoma.
@creekgirl, there are other members I can introduce you to who have sarcomatoid carcinoma located in the lungs, kidney, bladder and other locations. I'll be interested to hear what you learn from the PET scan about the origin of the sarcomatoid carcinoma and how it will be treated.
You mentioned that you are still sore from the surgery. How has recovery been? Can you share more?
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Thank you for your comments. The PET scan showed that the spot on my lung isn't maligned, but my lung surgeon is going to remove it February 16 along with checking three chest lymph nodes. My second breast surgery is Feb 3 to remove another slice of breast tissue, check lymph nodes and insert a port for chemo.
The center of my breast is still very tender, but I know it takes time to heal. I really don't have pain anywhere else which I truly thank God for.
My breast surgeon is considered the very best in eastern NC (maybe farther) and has been performing these operations for at least 20 years, but has only seen this Sarcomatoid Carcinoma every couple of years.
I have two tumor boards, one lung and one breast and an Oncologist.
The two cancers were discovered the middle of November, so I'm thankful surgeries and tests have been moving quickly.
I really believe that if I had not had a reason to have the 3-D mammogram and ultrasound, these cancers would still not be diagnosed. I had my regular mammogram and breast exam not long before that and nothing was found.
But my faith in God's mercy and healing and the strong support of my husband and children is what will get me through this.
Thank you again so much.