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← Return to The Patient Portal—Help or Hindrance?
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The Patient Portal—Help or Hindrance?
Just Want to Talk | Last Active: Feb 17 12:10am | Replies (227)Comment receiving replies
I do like having immediate access to my results but like others here I feel it requires a lot of work on my part to interpret it and I am sometimes wrong about the results. I actually preferred it before patient portals when my doctor got right back to me about the test. I had one doctor who actually called me at home on the fourth of July to report good results so I could stop worrying. My doctor now writes back one sentence answers to my questions after three days not always answering all of them.
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I understand what you mean about being able to access blood test results right away. I am able to do that also but as you said, what do the results mean?
My doctor is so very busy with others' whose CLL is at a later stage and they need treatment and they have many symptoms. I was just diagnosed last week of December 2022 and I will see my doctor next week. CLL is so very confusing.
You are told to watch and wait and that it is slow growing and that no treatment is needed at the moment and not to worry. However, i have no idea if my CLL will become worse and need treatment. Right now I have several symptoms...I am so very tired, my bones ache, I get small rashes and then they go away. The rashes appear out of the blue and go away out of the blue. No where do I see these symptoms on the CLL website. So are my symptoms from CLL or something else? I never has these things happen in the past...except for my bones aching and being tired, I had those symptoms for about a year now.
Do you have any symptoms like that? I feel crazy...