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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
I use Cera Ve creams and Working Hands several times each day. They help.
I cannot take either of the 2 main meds to help produce saliva because they make me sweat
(big time!), so I am resigned to having a thermal mug of ice water on the nightstand. Some nights I drink from it almost every hour. That makes for a rather poor sleep.
My other challenge is Raynaud’s Disease. Ice cold fingers and toes make winter difficult, but I still walk everyday ( with crampons) and snow shoe as well. I have to limit the time to about 25 minutes
outdoors.
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Have you tried over the counter Biotene? Comes in mouthwash , toothpaste and a mouth spray. I sometimes get dry mouth. Comes on suddenly I had tested slightly positive for lupus and Sjogrens at neuro and negative at rheumatologist. I think when you have are in the midst of an outbreak you show positive.