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@koh

Hi,
Wow, very scary not knowing! It sounds like your doctors are good with followup testing. Not to add more stress however have they also checked your brain? From what I have read it can go to the brain…. My doctor said there is a 1% chance but it might be something to check. When I had PET scan they said “it checks from eyes to thighs,” so brain is not included.
I hope the Cancer Board comes up with some suggestions for you!
Good luck!

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Replies to "Hi, Wow, very scary not knowing! It sounds like your doctors are good with followup testing...."

Thanks for your empathy and suggestions. I have added "check brain with CT or PET scan" to my long list of questions.