Hi,
Wow, very scary not knowing! It sounds like your doctors are good with followup testing. Not to add more stress however have they also checked your brain? From what I have read it can go to the brain…. My doctor said there is a 1% chance but it might be something to check. When I had PET scan they said “it checks from eyes to thighs,” so brain is not included.
I hope the Cancer Board comes up with some suggestions for you!
Good luck!