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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Feb 6 6:57am | Replies (1506)

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@katalinadrnnp

I am interested in treatment for Mesenteric Panniculitis and hearing outcomes. A family member has this and we are very concerned.

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Replies to "I am interested in treatment for Mesenteric Panniculitis and hearing outcomes. A family member has this..."

Hello @katalinadrnnp, Welcome to Mayo Clinic Connect. Sorry your family member has to deal with this and the same for you and the other family members. The Mayo Clinic is one of the leading institutions familiar with this disease.

I want you to know that I am not a Doctor and I have not had any medical training. I have mesenteric panniculitis, and what I have to offer you is based upon my personal experience. The treatment for mesenteric panniculitis (MP for short) varies depending upon the location and the extent of the inflammation, and the symptoms.

The most important part of the treatment, in my opinion, is having a Physician who has the knowledge and training to know what to look for when evaluating the CT scan. A Physician who has the knowledge to proceed with meaningful test which they determine are necessary and to prescribe medications that have proven to be of some benefit. Frequently medications are prescribed that treat the symptoms and the inflammation. This "may" include pain medication along with a synthetic corticosteroid, Prednisone. The following link will take you to a site that gives very good information. My Doctor at the Mayo Clinic referred me to this study: <https://rarediseases.org/rare-diseases/mesenteric-panniculitis/&gt;
Cut and paste the above link into your address bar on your browser. Let me know if this is a problem.

I hope your family member is doing well at this time. I hope their symptoms are manageable. Do you mind if I ask what information is currently known or been told by the treating Physician? Can you tell us a little about what motivated your family member to seek medical assistance and how the diagnosis was made?

Best wishes to all of you, awaiting your response and further questions.

@katalinadrnnp, The link I sent you in my response didn't copy or paste correctly. Please try the one below.

https://rarediseases.org/rare-diseases/mesenteric-panniculitis/