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← Return to Success with Prolia?
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I had my first injection of Prolia at the end of August 2022. I had serious reservations, but my orthopedic doctor said any pharmaceutical has a list of side effects that would scare the pants off you, yet very few people ever experience the bad side effects. Two things she didn't say was that Prolia is an immuno-suppressant and the other is that I will have to take it for the rest of my life. After I got the shot, she talked about the length of time I would be taking it and she stopped about 85 years old, which means she estimates I will only live another 17 years. I have been having fungal infections for the first time in my life that I cannot seem to get rid of. I don't want anymore pharmaceuticals, ever. I want to stop Prolia. I will see an endocrinologist as soon as I can get a referral to determine the best way to stop. I also have some dental problems that started after the shot, coincidence? I am very disheartened at this point and feel I've been lied to by all concerned.
Replies to "I had my first injection of Prolia at the end of August 2022. I had serious..."
Good evening @greyfox914,
I can understand why you are disheartened. I faced the same situation. I started Prolia after two years on Tymlos because I was not given any other options. I did not have it easy with pain in my gums and jaws.
Like you, I am not fond of any pharmaceuticals and stay away from OTC medications. I ended up with help from my new endocrinologist at Mayo Clinic to help me through the process of letting go of Prolia. I actually started the new medication on what would have been the second year of Prolia. So far....no side effects in the ensuing six months.
The fear of fractures just worried me no end. However, it's a new year and I am feeling more hopeful.
When is your endocrinology appointment?
May you be safe, free, and protected from inner and outer harm.
Chris
My doc’s plan was initially two yrs on, then two yrs off, but my osteoporosis numbers shifted into osteopenia levels and the osteopenia levels increased to near normal, so I have stayed on it. I read that only Prolia produces bone that is not brittle. I have no side effects.
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I’m sorry to hear that- my endocrinologist said you could take a Reclast yearly infusion instead.
Also, I read that just one Prolia and switching to another osteoporosis drug doesn’t lead to increased/rebound fractures that can occur. That happens if you stop Prolia and take nothing else.