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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)

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@poppy73

It does help. It is hard to apply old hard medical information.I about dropped my tablet when I looked up the term "Messentric Panniculitis " . The information is scary and brief .Have you found the medical community to be accepting and helpful ?

I have felt like people just want to keep passing me to the next person ....

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Replies to "It does help. It is hard to apply old hard medical information.I about dropped my tablet..."

I've been lucky with my doctors. They seem to know a lot about it and are great listeners when I have questions or concerns. I'm in Minneapolis and am using the Park Nicollet system.

I have Group Heath through the State.I have had a high turnover in doctors,but maybe something new isn't the worst thing.Where have you found out some of the latest research?

Google has a lot of information, so does the support group on Facebook. https://www.facebook.com/groups/509021492520535/ It is a closed group, so you have to ask to join. I'm on both this one and that one. Really great information. The other thing I wanted to mention, exercise. I walk every day about two miles. It keeps things moving, if you know what I mean...

Hi @berbitz - the link above is broken but they just setup a new website and it makes it a lot easier for people who are not on Facebook. Here's the link to the group which now has 501c3 status - http://solutions2pnpd.com/. You can also just go to the search at the top of the Facebook screen and type the groups name - Solutions to Peripheral Neuropathy Pain & Discomfort. I also belong to the group and the protocol has reduced the numbness in my legs - used to be just below the knees in both legs and now it's just above the ankles. I'm happy if that is my new norm because it means it's not progressing like the neurologist said it was going to do.

Exercise definitely helps - just have to be careful not to overdo it.

John

So glad to hear you're new norm is better. I agree, you can't overdo the exercise. For me, walking is plenty.

Not what you want to do when you are in pain, but I agree walk it off 🙂 Thing that is going to be tough for me is going back
to lifting once I go back to work for the school district. I may have to find a easier line of work.