My husband is in almost the same exact situation. He does not have obvious carcinoid signs and the
tumor was found accidentally. The EUS was inconclusive. They got 3 samples but they are trying to aspirate cells and couldn’t get enough. So suspected neuroendocrine is the diagnosis. We saw a local oncologist who wanted to rush him into surgery but we felt we needed to look at other options, since these are rare. So we went to a university center that specializes in Neuroendocrine tumors and, long story short, the cure is surgery. We are sad that he has to go through this, as he has elected open surgery, but feel it will be less stressful than watching it, overall. My advice to you: get a PET scan with 68 dototate dye so you know that there a no more tumors. Robotic surgery could be an option and less invasive, if you don’t have other tumors. Find a center of excellence and doctors you trust with your care. Please take care.

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