← Return to Success with low dose naltrexone for Autoimmune disorders

Discussion
Comment receiving replies
@kkathysan

@julie868 in response to your LDN inquiry I have just started taking it about 2 months ago. My PA suggested it for a case of Chronic Active Epstein Barre Virus. I have had it for years and am 69 now. It first raised its ugly head when I was 32. It has been a roller coaster ride, and in the past have maintained reasonably good health using supplements and diet. Now every time I have an upper respiratory infection, I end up spiraling into a flare of Mono which takes 6-8 weeks to come out of. I recently had RSV approximately 2 months after recovering from Omicron. The RSV kept me down for at least 6 weeks of symptoms. Needless-to-say we needed to try something different. Blood test revealed I was of course suffering with a flare of EBV and after 2 rounds of Prednisone and antibiotics, my PA suggested LDN. I have been tittered up to 2 mg so far, and started feeling better within a couple of weeks. I am cautiously optimistic and am hoping it will help with the EBV battle long term so I can get healthy again. 2022 was a rough one for me!

Jump to this post


Replies to "@julie868 in response to your LDN inquiry I have just started taking it about 2 months..."

I was with 3.0 mg and started low now for about 6 months but stoppped since i really did not see any difference in anything

So glad for your beginning recovery and prayers for complete remission and good health. One suggestion occurs to me: have you had your gamma globulin titers checked? I am on weekly infusions of Hizentra, which I take for gamma globulin titers probably suppressed since infancy. Is there a reason for your unusual susceptibility to infection? If yes, I opted for self-administration of replacement gamma globulin, which I infuse weekly. This option is less likely to have negative side effects compared with monthly IVIG administered by an infusion nurse.