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DiscussionWhat is the average age of the gentlemen on here?
Prostate Cancer | Last Active: May 17 5:31pm | Replies (498)Comment receiving replies
Replies to "I'm a 52 year old hispanic; I was diagnosed in June of 2022 with prostate cancer,..."
Your experience post RP sounds about as close to mine as I have read here and Thankyou for providing so much detail. I’m about 15 months post RP now and still experiencing meatal pain and discomfort which was never described as possible stenosis.
I did finally have a cystoscopy after a year of suffering.
Initially my pcp was chasing possible yeast infection which apparently I never had. After going to an infectious disease doctor and testing for any infection none was found, I had cystoscopy in the office( almost jumped through the ceiling) ouch!
He was able to pass the scope with some difficulty all the way to the bladder and reported scar tissue all the way up through. Because my stream is fairly good now I’m waiting and consulting long distance with Mayo urology in hopes of more improvement as I have noticed some since I quit trying to relieve the soreness with topical creams or gels which may have made it worse. The cystoscopy did not help irritation either. Incontinence is no longer a problem for me and lasted about 3 months. ED is still and honestly I don’t expect this to ever be back to pre surgery but still have some hope of some improvement without the drastic procedures I’ve read about. My age is 66, married, and had my surgery at 65 after 3 years of active surveillance.
Like you I never had symptoms but this is common.
I wish you well on your journey.
Thanks for the detailed review of your journey. I am in a very similar situation, just 3 months behind you. I am anxiously awaiting my first 3-month PSA check and am praying for a level of undetectable.
Best of luck with your continued recovery.
You have provided a lot of helpful experience here and thank you.
An update of my experience now 3.5 years out. Most all painful urination resolved.
Possible scar tissue remains but not enough to cause problems emptying my bladder now. My new urologist and I agree that all the trouble for first almost 3 years was due to nerve and tissue trauma after the surgery.
I’m almost fully recovered for now. Only a slight bit of stress incontinence occasionally. ED and intimacy issues are on going however and only slight improvement. Any rehab for this was delayed by the painful earlier experience.
Pills don’t work for me although daily 5 mg may improve blood flow some.
Trimix does work but has its own drawbacks. Keep on trying and grateful my cancer is still undetectable.
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Not ranting; quite valid expressions of some of the challenges, disappointments and successes.
Congratulations on your initial postop PSA.
My 90 day postop was 0.19; so disappointing and I just began combination 4 mos hormone therapy (Orgovyx) and 2 mos of radiation to pelvic floor (WPRT).
Surgery Aug 15 2022; Gleason 9 & 8s final postop pathology of prostate.
So I think that you are doing wll with the most important element; cancer control. Hoping your PSA remains undetectable.
ED function can return over months, and apparently years, so keep good thoughts. My surgeon's office recommended "exercising the function" 2/3 times a week. I'm 72 and penis is slowly coming back to life, so to speak.
Kegel exercises and walking are good therapy for regaining continence control. I went to a few PT sessions and they were helpful.
Best wishes for continued improvement.