Persisting abdominal pain, bloating, gas, clustering

My husband really struggled with dehydration and weight loss as well. For him I think it was a combination of many things- exhaustion, nausea, loss of appetite, change in taste. He also had extremely high output which wasn't controlled despite many adjustments in diet and medications- even specialized injections which sadly were ineffective. His change in mood was no doubt a result of the physical challenges and emotional confusion too. He noticed an improvement when he became willing to take the anti-nausea medicines that were prescribed for him. This allowed him to eat a bit more and gain some strength. He became disgusted at the thought of more Gatorade or other electrolyte drinks. I found online an electrolyte replacement tablet. You swallow it as a pill. We showed it to both his oncologist and surgeon who didn't really have an opinion on it. They couldn't approve/endorse it but didn't discourage it either. He decided to take it and it made a noticeable improvement in his fatigue. My suggestion would be to discuss how you're feeling (every last bit of it) to your team of doctors. They can then present you with options to best support you during this process and they will know what will be safe and healthy for you to pursue.

Being a Retired Paramedic and an EXTREMELY Type A, OCD. person I have a notebook at me side 24/7. If I'm in traffic I think of a question I can scribble it down while waiting at a light. If I awaken in the middle of the night or can not sleep due to the pain which seems to be 90% of my nights I will write down notes.
Always try to go into my appointments with a Focused 3 ( THREE)
Bullet points that I am determined to receive answers about. Along with 2 other backup just incase you have the opportunity.
You might ask your Dr if he minds if you take a small pocket voice recorder that will help you remember your conversation with him. Often they speak so fast and in medical terms which unless your a professional you will not understand.
Now this is my personal experience. Is I have Specialist who are NOT within the same network. ie. Their Dr.s notes etc do not cross share. So to keep everyone updated. At the end of each visit they pring an "AFTER VISIT SUMMARY " I take mine punch 3 holes into it and place it into a binder which I have them arranged based upon Provider. Primary care, Neurologist, Urologist, Cardiologist, Oncologist, Current Med List. Updated after each visit if there are dose adjustments, or Lab results which are released. Yes perhaps I'm " OLD SCHOOL " I prefer a hard paper copy documents whi can place notes on. Vs scanned electronics which may or may not preform when most needed in a timely manner.
Just a few tricks from someone who's been fighting this since 1996!

Hello @mardee313 @kerryos and others in this discussion group. I have heard of a product called, Enterade, which is supposed to be quite helpful in dealing with dehydration. I heard about this product in an in-person NETs support group. While I've never tried it myself it was highly recommended from someone who was dealing with the symptoms of carcinoid syndrome and the diarrhea and dehydration problems. Here is a link to product information, https://enterade.com/?gclid=EAIaIQobChMIosmPicWw_AIViLLICh2OfQoiEAAYASAAEgJw9PD_BwE.

I'm under the impression that this can only be purchased online.

Will you post again and let me know how you are doing with the problem of dehydration?

Hello,I will try to keep this as brief as possible while still covering everything and range of symptoms. I’ve had many tests and am relatively at a dead end while my life has been ruined due to what’s happening.To start I an otherwise healthy mid/late twenties male. No obesity.Starting 2 years ago I started to experience dry heaving. I had assumed at time this was stomach ulcer. Well the dry heaving passed but I am constantly nauseous, as well as experiencing a pain in my left side right under ribs to down next to my hip bone (I imagine this is colon pain). I have pain that can radiate to the lower left side of my back and numbness even in the same area but in my backside. I experience intense gas, and stomach groaning. Most days I wake up to a gurgling stomach. Half of days my stomach won’t stop gurgling as well as a pain in the center of my abdomen/lower bowels. I’ve noticed more the last 16 months my stool is quite unhealthy. For one it’s always yellow-ish vs brown, I have a large amount of undigested plant matter when eating vegetables whether greens or tomatoes. My stool is formed but often will take on a fuzzy looking appearance, or very jagged like broken shale rock. Sometimes it will be very slender. Sometimes when yellowish it will even look waxy/shiny. But almost never is healthy shape/color.I can have heartburn, which I was diagnosed with moderate gastroparesis 20 months ago through a GI emptying exam.I’ve had many blood tests done and ultrasounds as well. Everything was normal from including things like Sed rate, amalyse, and all the normal blood work (aside from high bilirubin which I was told I may have always had something known as Gilbert’s Syndrome).I’ve had 2 CT scans 18 months apart which showed borderline enlarged spleen, and a distended bladder. I also have some stones/polyps sludge in my gallbladder and I have Aunts that have had their gallbladders removed. My most recent CT showed some possible wall thickening in my proximial Jejunum (small intestines I believe), which my doctor wants me now to get a colonoscopy to check it out, though he doesn’t believe it to be anything too substantial.I’ve also had X-rays and ultrasounds done but these showed little. I had a Hida Scan and this was normal.I had an upper endoscopy which showed nothing abnormal.I met with a hollistic doctor and had a stool test and it showed high inflammatory to gluten and a decent lack of good bacteria. I have been gluten free for most this year and have been on probiotics. I feel like the nausea got a bit better but that’s it. I had no blood in my stool.I’ve tried constipation medicines like miralax and heartburn medicines to no avail. One medicine I was recommended was reglan, though I felt like holding off on it due to side effects and I’m not sure if it addresses the overlying issue rather than treating a symptom.My MAIN issues I’ve described but to reiterate is my left side pain to the point of numbness. And intense constant gurgling/feeling the need to burp. To put in perspective I woke up from a quick nap and it’s been 4 and a half hours and my stomach is still gurgling like as if i have a stomach flu. This is almost every day and you can hear it let alone me feeling it. Both the gurgling and the pain I believe causes then the nausea I experience.Other than this colonoscopy saying anything significant that many CT scans could not see (which I hope is not to the tune of something like cancer which I have family history of different cancers), I am at a relative dead end.I drank a lot in my 20s (probably averaged like 20 drinks a week) but had stopped at such a frequency to months before this began, I am not sure if is related. I also did not exercise intensively through my 20s at the most a brief walk once or twice a week and lived quite sedentary. I am not sure if this could have lead to this.I have had bouts of anxiety and depression in my life but I have a very good control and understanding to recognize what they feel like. Aside from what I’ve been dealing with I’ve actually been in one of the lowest stress environments I’ve been in for years, thanks to my families willingness to help. Which I mention cause I understand the stomach/brain link. One thing I do feel as well is more fatigued than normal for someone in their twenties. However I attribute some of this to getting older and I think may be due to feeling stress from my stomach being constantly aggravated is exhausting.Any and all suggestions are welcomed. My life has been relatively ruined/put on hold due to this as I’m always feeling nauseous and the pain is impossible to ignore. When it’s really bad which is far too often I feel like I can’t stand for long like I need to keel over. It often feels like someone is squeezing my belly, that it’s tight or hard, or that I’ve been punched in my left side.Thank you for reading.

Hello,I will try to keep this as brief as possible while still covering everything and range of symptoms. I’ve had many tests and am relatively at a dead end while my life has been ruined due to what’s happening.To start I an otherwise healthy mid/late twenties male. No obesity.Starting 2 years ago I started to experience dry heaving. I had assumed at time this was stomach ulcer. Well the dry heaving passed but I am constantly nauseous, as well as experiencing a pain in my left side right under ribs to down next to my hip bone (I imagine this is colon pain). I have pain that can radiate to the lower left side of my back and numbness even in the same area but in my backside. I experience intense gas, and stomach groaning. Most days I wake up to a gurgling stomach. Half of days my stomach won’t stop gurgling as well as a pain in the center of my abdomen/lower bowels. I’ve noticed more the last 16 months my stool is quite unhealthy. For one it’s always yellow-ish vs brown, I have a large amount of undigested plant matter when eating vegetables whether greens or tomatoes. My stool is formed but often will take on a fuzzy looking appearance, or very jagged like broken shale rock. Sometimes it will be very slender. Sometimes when yellowish it will even look waxy/shiny. But almost never is healthy shape/color.I can have heartburn, which I was diagnosed with moderate gastroparesis 20 months ago through a GI emptying exam.I’ve had many blood tests done and ultrasounds as well. Everything was normal from including things like Sed rate, amalyse, and all the normal blood work (aside from high bilirubin which I was told I may have always had something known as Gilbert’s Syndrome).I’ve had 2 CT scans 18 months apart which showed borderline enlarged spleen, and a distended bladder. I also have some stones/polyps sludge in my gallbladder and I have Aunts that have had their gallbladders removed. My most recent CT showed some possible wall thickening in my proximial Jejunum (small intestines I believe), which my doctor wants me now to get a colonoscopy to check it out, though he doesn’t believe it to be anything too substantial.I’ve also had X-rays and ultrasounds done but these showed little. I had a Hida Scan and this was normal.I had an upper endoscopy which showed nothing abnormal.I met with a hollistic doctor and had a stool test and it showed high inflammatory to gluten and a decent lack of good bacteria. I have been gluten free for most this year and have been on probiotics. I feel like the nausea got a bit better but that’s it. I had no blood in my stool.I’ve tried constipation medicines like miralax and heartburn medicines to no avail. One medicine I was recommended was reglan, though I felt like holding off on it due to side effects and I’m not sure if it addresses the overlying issue rather than treating a symptom.My MAIN issues I’ve described but to reiterate is my left side pain to the point of numbness. And intense constant gurgling/feeling the need to burp. To put in perspective I woke up from a quick nap and it’s been 4 and a half hours and my stomach is still gurgling like as if i have a stomach flu. This is almost every day and you can hear it let alone me feeling it. Both the gurgling and the pain I believe causes then the nausea I experience.Other than this colonoscopy saying anything significant that many CT scans could not see (which I hope is not to the tune of something like cancer which I have family history of different cancers), I am at a relative dead end.I drank a lot in my 20s (probably averaged like 20 drinks a week) but had stopped at such a frequency to months before this began, I am not sure if is related. I also did not exercise intensively through my 20s at the most a brief walk once or twice a week and lived quite sedentary. I am not sure if this could have lead to this.I have had bouts of anxiety and depression in my life but I have a very good control and understanding to recognize what they feel like. Aside from what I’ve been dealing with I’ve actually been in one of the lowest stress environments I’ve been in for years, thanks to my families willingness to help. Which I mention cause I understand the stomach/brain link. One thing I do feel as well is more fatigued than normal for someone in their twenties. However I attribute some of this to getting older and I think may be due to feeling stress from my stomach being constantly aggravated is exhausting.Any and all suggestions are welcomed. My life has been relatively ruined/put on hold due to this as I’m always feeling nauseous and the pain is impossible to ignore. When it’s really bad which is far too often I feel like I can’t stand for long like I need to keel over. It often feels like someone is squeezing my belly, that it’s tight or hard, or that I’ve been punched in my left side.Thank you for reading.