Mesenteric Panniculitis or Sclerosing Mesenteritis

Thanks so much everyone has been so helpful however I met with my Doctor yesterday and because I am a Veteran he wants me to see the VA GI doctor for recommendations before they out source my care. I am asking them to pay for it since l am under their care I will wait and see. With the SM Groups support I feel so hopeful. Thxs again everyone, Wishing all of us God Speed.

Good to have you James (Reid). So much good info (350 members) and looks like you had a couple referrals already
Lisa

And a fellow Oklahoman. Nice chat on the phone. Lmk if you need anything else. You have my number and some good references to start in your journey with MP

Asking for clarification on this, but we've had many members (we have a private group growing everyday and up to 350 members presently) but made over past year assume they were making appts with Dr. Pardi to get there and traveled a long ways, and have to see an associate and many have been told pardi isn't seeing patients ....not sure if this is temporary or not? Not taking new patients? Retiring? Not sure what the situation is, but our last ten or so or more have not seen Dr pardi after making an appt with him and traveling a long ways to see him and out the money. Many have been upset never saw him and told they wouldn't be seeing him and were told they get to see a gi. Do we know what that answer is from any of the mayo employees? A correct answer ? Thx all 🙂

Hi @warlick,

Thank you for sharing the update and information. Please note that I removed your personal email and address from this public discussion. Posts to the discussion board are public, and we don't want you getting unwanted spam etc. We recommend sharing personal contact information by private message as it is a secure, private option.
Thank you for understanding.

Please keep in touch and let us know if you have any questions; we're listening.

Ok thxs no problem

Hi All, I was just told I have MP after having severe abdominal and fever with nausea and vomiting. I had a Ct which showed a hazy mesentery and mildly prominent nodes. Glad I found this group. Going to see GI MD in 2 weeks.

Hi @lisas444,

Mayo Clinic gets more requests to see patients with mesenteritis than Dr. Pardi can see himself. We have a team of expert doctors experienced in treating patients with this diagnosis, who work collaboratively at each of our 3 locations: Rochester, Florida and Arizona. Many of them have done research with Dr. Pardi on mesenteritis. Dr Pardi's colleagues often consult with him, especially with extraordinary cases.

Due to the large number of requests for appointments we get for mesenteritis, our physician experts review the CT scans of each patient prior to their traveling to Mayo Clinic. Their review helps them to determine whether to offer an appointment. For patients with minimal findings on CT scan, we may suggest seeking care locally. It is our goal to provide the best care each patient needs, however we do not want to have you incur additional costs for evaluation or travel if we do not feel we can offer care that is different from what you’re already receiving or can receive locally.

I hope this helps answer your question.

Mayo Clinic gets more requests to see patients with mesenteritis than Dr. Pardi can see himself. We have a team of expert doctors experienced in treating patients with this diagnosis, who work collaboratively at each of our 3 locations: Rochester, Florida and Arizona. Many of them have done research with Dr. Pardi on mesenteritis. Dr Pardi's colleagues often consult with him, especially with extraordinary cases.

Due to the large number of requests for appointments we get for mesenteritis, our physician experts review the CT scans of each patient prior to their traveling to Mayo Clinic. Their review helps them to determine whether to offer an appointment. For patients with minimal findings on CT scan, we may suggest seeking care locally. It is our goal to provide the best care each patient needs, however we do not want to have you incur additional costs for evaluation or travel if we do not feel we can offer care that is different from what you’re already receiving or can receive locally.

Hi, I have been fighting this severe abdominal pain that tends to stay near my belly button and then likes to radiate left. Some days its manageable and some days I am literally doubled up waiting to die. I recently got a job at a hospital with awesome benefits so I starting talking to every doctor I could find as I support them all. Various pain management drugs were tried with little effect so I found a GI who scoped me from both ends and found nothing. Then they ordered a CT and wham there it was. I was diagnosed with mesenteric panniculitis but finding what is best to kill the pain is a battle still raging. They started me on 40mg of prednisone which works great but is causing other issues such as fast heart rate and elevated blood pressure not to mention makes me moody as hell. 10 years ago I was diagnosed with prostate cancer at age 38. I already have high blood pressure and I am also a prostate cancer survivor. My doctor is not all that versed on this condition and both the GI docs here at the hospital seem also not to know much about it. My doctor has tried other things but nothing works like the prednisone. I just can't handle the side effects. I wish I could find someone locally who has a good understanding of this disease and could help me find a way to cut out the pain. I was quite overweight and have been on a diet to the point that I have dropped 30 pounds but the pain some days continues to be unbearable. Starting to get frustrated.