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Coffee and Neuropathy

Neuropathy | Last Active: Jun 19 2:12pm | Replies (62)

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@monsieurbj

An update. First stopping the caffeine for a month did nothing for my lower leg pain. I hike 7 days a week, I push it on mountain trails and before that I was pushing my recumbent trike miles around town every day. I've never just sat around and done nothing.

So, has anyone had similar symptoms and done all the physical exertion that I do and found it helpful to take a few days and just do nothing? If so has it helped. I don't think my hiking has done anything more than increased the pain. When I sit and don't put weight on my legs the pain stops. Even now at the computer I don't feel pain but I will as soon as I put weight on my legs. I'm not heavy at 5'11" and 160 pounds but I don't know that matters. Should I try doing nothing and see if that turns things around. I don't suffer any pain while sleeping but getting up is like painful shock therapy on my legs in the morning....ideas anyone? Thanks Bob

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Replies to "An update. First stopping the caffeine for a month did nothing for my lower leg pain...."

For 2021, I was averaging 122 miles a month walking & hiking here in Flagstaff, AZ (at 7,100 ft.) but, for 2022, I cut back and averaged just 104 miles a month. My feet have felt better but I don't know if it is related to my neuropathy. I'm 5' 9" (previously 5' 10") and about 178 lbs. In Oct. 2021, I started taking two - 300mg. capsules of Gabapentin. In March 2022, I requested an increase to 3 capsules but for about 3 days a week until Sept. 2022 I only took 2 capsules. Since then, I always take 3 at night but I'm about to request an increase to 4 as my feet have started hurting more during the day. I know that many of you take a lot more than 1,200 mg./day. The pain varies from sharp to dull to a sunburn type sensation to a fuzzy cold numbness sensation.

I really appreciate the Mayo Clinic hosting this discussion group as the info that I get from you all is great but, I'm really, really sorry to report that I received a rejection letter from the Mayo Clinic when I requested to see someone that specializes in neuropathy. I know that they are super busy and, during the phone interview, I told the Mayo rep that I didn't expect to get an appointment for at least four month or more but, I didn't expect to told, "No.", by the Mayo Clinic. Can anyone recommend a neuropathy specialist in AZ, NM, Las Vegas, or southern Utah?

Thanks, Joel