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Forteo vs. Tymlos: Which did you choose?

Osteoporosis & Bone Health | Last Active: 1 hour ago | Replies (622)

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@windyshores

@katwhisperer I came up with the idea of starting Tymlos at a low dose, myself. My doctor was delighted. I also called Radius (the manufacturer of Tymlos) to talk to them about it. I told them they might be losing customers who react badly at first to a full dose.

I was never able to take Forteo. I went to an immunologist to try to get on it, years ago, and spent a day in the office trying to get desensitized with small doses. I wasn't thinking of that but maybe it influenced me.

I ended up in the ICU when I tried a higher dose on Tymlos, with afib. I can't say for sure that it was caused by the med, since I have had episodes once a year since 2015. But it felt related. I was very determined to get on Tymlos and starting low was the only way.

My doctor was happy when I reached 6 clicks and for more than a year I have been doing 7.. I still cannot do 8!

There is no harm in this at all so why not? Why would anyone object?! These are hormonal meds. Most people say their body adjusts to them over time and any side effects like headache, dizziness, fast heartbeat, or nausea go away. That has been my experience too.

I have quite a few fractures. Mainly because I could not get on any meds or my doc didn't want to risk them. I come on this forum to tell people you do not want fractures! And you can feel strong (I was doing sword tai chi) and still fracture. Osteoporosis does not have symptoms until you fracture!

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Replies to "@katwhisperer I came up with the idea of starting Tymlos at a low dose, myself. My..."

thank you for your helpful comments. You would think Tymlos would emphasize this option or at least mention it. So important for patients to take the initiative on their own to find the right solution. I've learned far more here than I have from any of my doctors.