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@justinesmith

When people say CLL specialist what is meant by that exactly? I have a hematologist/oncologist and no I am not that comfortable with him. What percentage of patients should a doctor have to be considered a CLL specialist. I have called around and found someone who has 20% CLL patients. Should it be 50%, 100% cll?

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Replies to "When people say CLL specialist what is meant by that exactly? I have a hematologist/oncologist and..."

I've actually never thought about percentages but first a hematologist not just an oncologist, then I would look online and see what their specialties are and what their SUB specialties are. Where do you live, if you want to share. Town or state. Most big hospitals have a cancer center. I just found an old post I wrote on FB about a CLL doc I had who took blood by pricking my finger and squeezing it into a tube!! She hardly did any tests. Crazy. There are a lot of new CLL treatments (meds) here and coming out and if your doc doesn't know about them or the tests you need to take and what labs to watch, then it's not a good thing. CLL is VERY specific. But then again it's also not extremely common although I heard it's the new up and coming "star"!!!