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DiscussionFrustrated with the medical establishment
Neuroendocrine Tumors (NETs) | Last Active: Jan 5, 2023 | Replies (9)Comment receiving replies
Replies to "No, my team advises that all tests are "normal" . All lab reports, billings, doctors' notes,..."
While I'm not a medical professional, @pippa05, your symptoms sound like carcinoid syndrome and there are treatments available for those symptoms. If your current oncologist is not willing to help you with these symptoms, it might be good to seek a second opinion. I'm also wondering if you have had blood tests to check for Serotonin levels. As you have access to your test results through the patient portal, check to see if this test has been done.
Here is a link from the Mayo Clinic's website on the topic of Carcinoid Syndrome. After you read about the symptoms, causes and treatments, talk to your doctor about these symptoms as it relates to carcinoid syndrome.
https://www.mayoclinic.org/diseases-conditions/carcinoid-syndrome/symptoms-causes/syc-20370666
Will you let me know what you learn from this article?