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Scoliosis - Introduce yourself and meet others

Spine Health | Last Active: 1 day ago | Replies (443)

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@reneeksmith

Looking for others with adult-onset scoliosis. Mine is quite severe; twisting serpentine spine causing me to use a walker within two years of first noticing pain and curvature. One MD commented that I looked like two people standing side by side, the curve is so dramatic.

The only option offered to me at age 70 is pain management and physical therapy. Does anyone else have a different experience? Bracing, perhaps?

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Replies to "Looking for others with adult-onset scoliosis. Mine is quite severe; twisting serpentine spine causing me to..."

Hi @reneeksmith Welcome to Mayo Clinic Connect. Scoliosis and adult onset scoliosis is out of my area of experience but I did find a discussion in our forum with a fellow mentor, @jenniferhunter. She initiated the discussion with “Answers about Controversial Trends in Spine Care” that you might find interesting. I posted links to the original conversation as well as a reply to another member who has the same spinal condition.

This is a link to the comment in the discussion
https://connect.mayoclinic.org/comment/638896/
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https://connect.mayoclinic.org/discussion/controversial-trends-in-spine-care/?pg=2#comment-638896
There is one thing I’d like to toss out to you. My daughter works with a personal trainer in Functional Patterns (Minneapolis) but there are facilities world wide. https://functionalpatterns.com/
There are often photos of clients the trainers have worked with in their training clinics. Several of these are people who have scoliosis. Young and older. Significant changes took place when the clients learned the proper exercises needed to counteract the contortion of the disease. It’s just something I thought I’d mention.

I hope you can find some answers in the group. Are you having any relief with the PT your doing?

In the fall of 2011, I started having pain on the left side of my lower back. I looked in the mirror and saw that my spine curved to my left side. In the April, 2012 issue of the Mayo Clinic Health Letter there was a major article about adult degenerative scoliosis. It recommended exercise, and painkillers I did not want. I went to my doctor who prescribed physical therapy at Gottlieb Hospital and then went to their fitness center for exercise. A friend referred me to her chiropractor, but after two months I quit because he didn't help.

On Wed. March 17, 2021 I was in the welcome area of a church I was visiting and my left foot suddenly flew out to the left. I fell on my arm and broke my left wrist. I was taken to the Gottlieb ER and spent two more days in the hospital. After three casts were removed, I had four sessions of hand therapy and then 12 sessions of physical therapy. The therapist said that at my age of 84 there was nothing more she could do for me. I found that when I walk with a trekking pole (walking stick) in my right hand, it helps to alleviate the pain.

Hello @reneeksmith. I'd like to add my welcome to Mayo Clinic Connect. I see that @loribmt and @jenniferhunter have both joined and responded to you already!

You will notice that I have moved your post into an existing discussion on scoliosis where others with scoliosis can more easily connect with you and share their experiences as well. You can find your post here:
- Scoliosis - Introduce yourself and meet others: https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/

I'd like to bring in members @palmsprings59 and @lifetimepain who may also be able to provide you with some support.

Of the options that could be offered, do you have a preference if your doctor would be open?