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What's your experience with Orgovyx (relugolix)?
Prostate Cancer | Last Active: 17 hours ago | Replies (185)Comment receiving replies
Thank you for your response I really appreciate your sharing information, particularly such personal information.
I'm reading your response to indicate that you completed radiation therapy, and fatigue became an issue in the last 10 weeks or so. That is of particular interest to me because I will be driving about an hour 15 minutes each way to receive my daily radiation therapy. I'm hoping that I can make the drive through the entire course of Tx, but I can stay over some nights if necessary.
Hormone therapy, which begins tomorrow morning, is what really concerns me. Have you noticed any fatigue that you attribute to the hormore therapy? Do you think that it added to the fatigue of radiation? And do you still have fatigue after radiation ended and with continued Orgovyx therapy? My wife and I have a (twice delayed) trip planned in April and I'm trying to "guess" if I will feel well enough to travel (would be about 1 mo after radiation ends and 3rd/4th month of Orgovyx). My RP was Aug 2022, but my 1st 90 day postop PSA was .19 (repeated 0.18) in Nov, so the needed additional therapy immediately after I have recovered very well from surgery is a major disappointment for me.
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"..and fatigue became an issue in the last 10 weeks or so.."
Not ten weeks, ten sessions. 14ish days
I don't think I would have had any trouble driving an hour after that, I don't think it's debilitating to that level. You'll have to see for yourself as your treatment progresses though.
"...Have you noticed any fatigue that you attribute to the hormone therapy?"
Perhaps? it's hard to say for sure. Initially it messed with my sleep so there was that, now that the sleep issue isn't a problem I'm getting through the day pretty well without excess fatigue.
Often, I believe, many of these symptoms we attribute to the meds and radiation may just be us getting older. I'm 61 now and like most 60+ year olds, starting to slow down some. Does the medicine exacerbate that? Maybe? Correlation isn't necessarily causation.
I'll let you know when I stop taking it!
"My wife and I have a (twice delayed) trip planned in April and I'm trying to "guess" if I will feel well enough to travel"
From my experience, I'd keep the plans. You can sleep on a plane! It will be a)something very positive to look forward to and b) a great break from the routine. My RO told me that most people take about a month to start getting back to "normal" so that'd be about right.
I'm assuming you're not referring to something challenging like an African Safari on camel or anything....
"....is a major disappointment for me."
Right there with ya. I will say this though, once I got into the routine, it went by pretty quickly for me. My hope for you is that you have the same experience.