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Newly diagnosed - neuroendocrine tumor in intestines

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (45)
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@cathyprince50

Hello Theresa. Can you tell me how serious a descending colon NET that has metastasized to the stomach lining and 83% (at least) to the liver. My daughter of 39 years was first diagnosed at the end of October.

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Replies to "Hello Theresa. Can you tell me how serious a descending colon NET that has metastasized to..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 5, 2023

Hello @cathyprince50 and welcome to Mayo Connect. I'm sorry to hear of your daughter's diagnosis. As you may know, here on Connect we are not medical professionals, just patients who support and encourage each other. Therefore, I cannot explain your daughter's diagnosis other than to say that she needs to address her concerns with her doctor.

I would encourage her to consult with a NET specialist. As you probably know, NETs are a rare form of cancer and not every oncologist is equipped to treat NETs. If you go to the Carcinoid Cancer Foundation, you can view Patient Resources and find information on specialists. Here is the link to the website, https://www.carcinoid.org/for-patients/

If you are comfortable with sharing more, what type of symptoms was your daughter experiencing when the diagnosis came about? Has she had surgery for the NET in the colon?

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