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@SusanEllen66

Hello! You are so very right! I have been down a similar road, and at the age of 73 I know my body better than any health care provider.
Right now I’m in a lot of pain all over my body. I have several autoimmune diseases and I believe the pain is from that. One Doctor agrees with me because of my symptoms. Another says no because my blood work doesn’t show enough inflammation! So, I basically stuck between two different diagnosis.
I’m want to say I am too old for this aggravation, however I would rather say that I am blessed.

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Replies to "Hello! You are so very right! I have been down a similar road, and at the..."

I have read about many auto-immune diseases and the symptoms of several of them overlap with each other and with ME/CFS, so it is very hard to know which diagnosis is is correct. Additionally, as we age, we have aches and pains. My upcoming visit to a new rheumatologist is my last attempt to try to get a convincing diagnosis as based on my reading, I suspect that I may have Sjogren rather than Fibro or ME/CFS. Whatever the outcome of this visit, I will continue with my life following my knowledge of my body, being kind to myself and to the extent I can, continue my volunteer work. Helping others to me is healing not only to others, but to me. Thank you SusanEllen66 for your response. There is wisdom in aging and acceptance of whatever life deals you. Wishing you the best of health in 2023 and beyond.

I’m so sorry that are in so much pain. Be kind to yourself. Acknowledge your pain, but focus on life. Do what you are able to do. Pain is debilitating, but I find that doing a guided body scan, a kind of meditation helps to relax the body and relieve the pain. Jon Kabat Zinn has excellent recordings that you can listen to online on your your iphone.If you are comfortable with a cell phone, try putting his name in and you may get a recording you can use. Dr. Zinn created this guided meditation and uses it in a hospital in Worcester,Mass to help relieve patients who are in pain. I have found it quite effective. It’s possible that. He has created CD’s. I’m not sure. Best wishes.