Hello MP group. By the miracle of tagging I was contacted by kanaazpereira on her Colcrys (colchicine) inquiry, above. I am in another rare disease group, familial Mediterranean fever, and colchicine is our gold standard treatment and therefore I know a lot about colchicine and its availability and its sources. FMF patients take colchicine everyday. If any of you in this group need access to colchicine, contact me because I have had to compile an exhaustive list of colchicine resources for our patients. Is colchicine taken by many of your patients or only a few? If it is an important treatment for MP then I will provide you with exhaustive information on colchicine. I do not see a way to leave an attachment with this message so if you want these documents send an inquiry to me. The FDA has made the US the worst country in the world for colchicine access. Colcrys is a brand name for one brand of FDA approved colchicine. The maker of Colcrys jacked up the price 50-fold. A second brand Mitiage got on the market but maintained the high price. Colchicine is cheap everywhere else in the world. The insurance companies - many of them - have stopped reimbursing colchcicine because of the unjustified price so many patients are led to believe that they have no choice but to pay these hyperinflated costs out of pocket. Not true. Most FMF patients now get colchicine - legally - from Canadian online pharmacies with a valid Rx. Instead of $5,000 /yr out of pocket they will pay about $300-$500 out of pocket. If a patient goes over the border into Mexico they can get the same thing for about $90 - this is legal and the Mexican colchicine is a legitimate brand. Colcrys has a very high adverse response rate in FMF patients. But we take it every day, forever. For patients taking it sporadically the response may not be the same. I have a list of Canadian online pharmacies where our US patients get their colchicine with contact info and comparative prices. Contact me for any further info about colchicine - and our best to y'all from the FMF community. [ This site blocks e-mail addresses if it is the first time you post so I can't leave my e-mail address - if anyone wants further info post a message here with info on where I can send it]
Janine Jagger

My gastro dr, has me on colcrys .6 1x daily and it controls the MP. My insurance co. Now refuses to cover it. My dr, read studies showing that colcrys controls the MP and I am grateful for that, please send me info on how I can obtain this medicine legally from Canada and I will get a written script from her, thank you very much and hope you do well controlling your FMF. Susan