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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Feb 6 6:57am | Replies (1506)

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@kanaazpereira

Hello @mcminmark,

We are so glad that you've come to Connect, and to know that you are an advocate for your own health. Thank you@bertbiz, as always, for joining in the conversation with your valuable insight.

I'm tagging @billymac65 @dotb @danrofohio @mardellepoff @billindc @vdouglas @amyd @doron @bakb @vmc123 @jimmymac @angel11 @snoopdog @eddieg @tlw32 @mommasaid @buckeyze @peterhamilton @tardis6167 @hardclose to join in; there's a great group of people here ready to share their experiences.

I also wonder if @winnah @tavi @tllamber @dicknlou @jmbazan @katieslost @lyndamm @kathyzendner @barbararickard have any recommendations for you, as they have discussed visiting/living in the Portland, OR area.

@mcminmark, have you been put on any medications to manage the flare-ups?

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Replies to "Hello @mcminmark, We are so glad that you've come to Connect, and to know that you..."

@mcminmark - private message sent with name of endocrinologist.

Hi @kanaazpereira, thanks for all the tags! My Internist had his staff call this diagnoses to me. I asked for a copy of the report, which I got in the mail yesterday. They do say if I have any questions to ask, but I'm asking myself if there is really a reason to meet with him, or if I should move to a good GI Dr.. The radiologist seemed to be the one driving here, not the Internist.

Getting to your question, no. No medications have been brought up. I have read here some have taken prednisone and tomoxofin. I don't take anything for the pain, mainly because I hear long-term use of inflammatory drugs are not a good idea, plus I want to address this, not mask it.

I'm off to Mexico for two weeks here in a few days, extra concern there on the food/water. Will be interested to see how the lack of work stress and the relaxation play into this.

Thanks,
Mark