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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@mcminmark

Hi, just got the mesenteric panniculitis diagnose the other day. The Dr. didn't even call me, he had his staff do it. They did say if I had any question to call him. After a little reading here, I'm not sure how to take his aloofness. They also found a small node on my adrenal gland. They want to CT again in 6 months. I'm kind of proactive, I'm not just going wing this. The direction I feel it taking me is concerning. I need to find out what not to eat, in a simple format that I will follow. Here is my first step, talking about it with my peers.

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Replies to "Hi, just got the mesenteric panniculitis diagnose the other day. The Dr. didn't even call me,..."

Hi @mcminmark, I was diagnosed with MP last May after a couple of months of wondering what was going on. I was diagnosed via CT Scan. I was then referred by my main physician to the GI Doc. I have yet to meet the actual Doctor. When I go to the GI Clinic I meet with the Nurse Practitioner. She is very knowledgeable and answers all of my questions. At first it kind of annoyed me that I couldn't talk to the Doc, but I have gotten used to, and actually like the Nurse Practitioner. I have been using the FODMAP diet http://www.ibsdiets.org/fodmap-diet/fodmap-food-list/ which has helped me a lot. I've said it before, having MP is like playing Russian Roulette with food. I have found that I can no longer eat raw vegetables, nor can I eat anything made with corn. (I miss popcorn the most). As the FODMAP suggests, when you introduce new foods, do it one at a time and wait a couple of days to see what happens. I tried to eat a salad a couple of weeks ago, not a lot of lettuce, but some with raw carrots, and I set off a flare for a couple of days. A small amount of raw carrots hadn't bothered me before, so it must have been the lettuce. I don't eat any kind of beans anymore, either. Anything really high in fiber is a problem. At the beginning of the worst of my MP, I was drinking a lot of banana smoothies made with Kefir. I was told to eat white rice, white bread,etc. I had a lot of chicken broth. It's a slow frustrating process. But you have to be patient. I lost eight pounds at first, which should be a dream come true, but I felt awful. As soon as I started the FODMAP diet, I put the weight back on and felt much better. I didn't take any pain killers or supplements, but that doesn't mean those things won't work for you. Everyone is different. I did take Prednisone for two months.
Next week I go for my third CT Scan for a recheck. If this one is as good or better than the last one, I don't have to have another scan. I will just follow my diet and my instincts. I am hoping for a good report. I'll let everyone know.
I hope some of this was helpful.
Take Care of yourself.