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Post allogeneic stem cell transplant (SCT) Digestive Issues
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jan 15, 2023 | Replies (8)Comment receiving replies
@loribmt Thank you, Lori, for your insight! Getting enough calories in him is a challenge and I appreciate the tip regarding the Lactaid Ice Cream! He drinks about 48-60 ounces water daily so I will suggest to him to get a little more water in.
I am doing pretty well, thank you for asking! Definitely a learning curve as, before his blood cancer diagnosis a year ago, he was 100% healthy. We try to keep the perspective that getting through the next 60 days is the goal for now, for today 🙂 We are staying in long-term housing on the campus of the Mayo Clinic in Phoenix so we are away from family. Our son lives in the area here and we did see him on Christmas for an hour, outside, masked. Great to hear you are doing well at 3 and a half years post SCT, very inspiring!! Thank you, Jamie
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It’s my pleasure to help walk along this journey with you. Your husband’s story sounds a lot like mine. Just 3 weeks before my diagnosis I had been healthy, energetic, no sign of any issues. Then a steep plummet in 3 weeks time and finally a diagnosis of Acute Myeloid Leukemia with mutations that made relapse likely. So that necessitated the allogenic transplant.
Having this second chance at life is certainly a gift like no other. It comes with some challenges that’s for sure! But it is so worth the effort to keep forging onward. The ‘bad’ days will become less and less. I promise ☺️
It’s great your son lives in the area! It helps to have some snippets of normalcy during the recovery period, especially when you’re away from home so long.
Your husband is doing great with 48 to 60 oz of water daily. Initially I had such a hard time even keeping a glass of water down at all. But it is so vital to keeping the body healthy, hydrated, the plumbing works better and the toxins get flushed through.
Let your husband know getting enough food will eventually stop being so challenging. My husband jumped through hoops trying to get me to eat. I mostly just nibbled on anything that seemed palatable. I still had issues with loss of taste and tastebuds from all the chemo from the AML so textures were an issue too. But now, I eat everything! 😅
His energy and stamina will return too. I’m back to 7-8 miles daily and no limit to my activities. Your husband will be back in no time!
Thought you and your husband might enjoy a little story written about a young woman, whom I mentored last year, and myself with our shared experience with AML and our BMT journey.
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/mayo-clinic-connect-brings-together-2-women-with-leukemia-46-years-apart/
What cancer derailed your husband last year?