Connect
← Return to Mesenteric Panniculitis or Sclerosing Mesenteritis
Discussion
Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)Comment receiving replies
Hello @clover,
Welcome to Connect. I'm so sorry that you are going through this, but I want you to know that you've found a wonderful community here on Connect, and assure you that you will get much-needed support and answers.
There's a great group of people here ready to share their experiences: please meet @bertbiz, @mardellepoff, @miker46, @billymac65, @mommasaid, @vdouglas, @doron, @ngilson, @billindc, @billymac65, @doron, @gmeg.
@clover, what symptoms are you dealing with at the moment?
Replies to "Hello @clover, Welcome to Connect. I'm so sorry that you are going through this, but I..."
Connect
Hello to you as well. I have Sclerosing Messenteritis.I have a lagre tumor,mostly right side,covering the small and the large bowel.
I was opened a year ago to have a biospy,they thought carciniod,it is a big mass,I look 9 months pregnant too..
The surgeon got his nodes to look at,as there were nodes,but I began to bleed out when they tried to reduce the tumor growth.
So they sewed me up and now i suffer so much.I have small obstructions a lot now,i have been eating very little hard food,i just went for a MRI 2 days ago to see what it has done know.
My rheumy seems very unphased,but i cant eat,and the pooing stops too,so my GP and myself decidied if I can find a Gastro Surgeon who is willing to open me up I will take the risk.
If I dont do it i will die home soon.If id doit i might die from complications,but until I am dead I will take a chance to be here a bit longer with mykids ad graandkids.
I really need to find a good surgeon to contact in Sydney,I live in Broken Hill,a small town,but will fly to Sydney to take the chance on this..does anyone know of any Doctors/Surgeons who have been around SM??
Thanks for any help given in advance 🙂