← Return to Iron Depletion in Blood related to COVID?

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@jerrysgirl3

I also have chronic leukemia, diagnosed in 2015 by accident when my bowel burst! I was in watch and wait for 7 years and finally started meds July of 2022. In August 2022 I caught Covid since immune system is basically wiped out by meds and went on Paxlovid for Covid for five days and had to stop CLL meds. After that I couldn't take meds anymore so I stopped and my blood levels went almost to normal !!! I feel like they're going back up again so will eventually have to start meds again I'm sure, but want to wait anyway til after the Christmas /New Years Covid boost is past. Do you have a hematologist who specializes in CLL? Very important. It's a whole other ball game. And make sure you are comfortable with the doctor. Many of us go through several before we find one we stay with. (However I feel my oncologist takes better care of me lol- I'm also a breast cancer and thyroid cancer survivor and stroke) Has your husband been tested for leukemia as well? I wish I lived near a major hospital instead of in the boonies where each doctor is in a different group and thus they refuse to talk to each other!! Truly!! Anyway yes. A cbc with differential is best test.

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Replies to "I also have chronic leukemia, diagnosed in 2015 by accident when my bowel burst! I was..."

When people say CLL specialist what is meant by that exactly? I have a hematologist/oncologist and no I am not that comfortable with him. What percentage of patients should a doctor have to be considered a CLL specialist. I have called around and found someone who has 20% CLL patients. Should it be 50%, 100% cll?