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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@danielcamp

Hi @snoopdog, I hope you get the help you need, cause I know how it can be.

Well guys I went to see a surgeon today and. honestly it seems like its the same thing all over again. Went there and he claimed he could not find any reports that said I needed a biopsy or even had this disease. I handed him the reports I had that should that I had it and needed a biopsy and even then he looked and told me that those were from the town over. As such he said they are just trying to frighten you. Should him the head surgeon of his hospital said I needed it and all he did was tell me that he does not see that I do. That if that was the case the head surgeon would have done a biopsy. I get I have a rare disease, if I have it, but this really is getting old as of today it has been four years of me trying to get help, not to mention the first year they were claiming I had cancer. And I am still told by some I have colon cancer but that its find they do not see me needing any kind of treatment.

Tiring, any way I hope everyone else is doing ok.

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Replies to "Hi @snoopdog, I hope you get the help you need, cause I know how it can..."

Hello @danielcamp, that is why I sound like a broken record recommending the Mayo Clinic. It may be a challenge to get there but you will be examined and diagnosed properly and by qualified doctors. Sorry you didn't get the help you were hoping for. I spent two years trying to get help before the Mayo. Had the ER Dr wrinkle his face and ask me if I had cancer. I hear the same stories over and over.

What are your plans now?

Daniel, sent you a private msg on here
Lisa