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DiscussionPost allogeneic stem cell transplant (SCT) Digestive Issues
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jan 15, 2023 | Replies (8)Comment receiving replies
Replies to "Hello! His SCT doctor and the team have not been overly concerned as diarrhea is typical..."
Good morning, @jandm1813 At day 41 after an allogenic transplant, it’s not unusual to still have continued nausea though it starts tapering off. It comes with the territory. Having pain isn’t as common so his doctors may do the upper/lower GI scope. A question…is he on oral magnesium or still getting infusions? When I switched to to oral mag, that’s when diarrhea started. We then substituted Magnesium glycinate for the Mag Citrate. It was a game changer.
I’m glad to hear the prednisone is working for his skin gvhd. It should have the same effect on his gut issues if that’s gvhd as well. That’s what prompted me to ask about the magnesium.
Tell him to hang in there! I promise this gets better. I’m at 3.5 years now and feeling awesome. That first 100 days is rough. There are so many ups and downs. The nausea is the pits but it gradually goes away and eating becomes easier.
If he does gravitate back to the plant based diet make sure he’s getting enough protein. The chemo and the transplant itself is traumatic and just getting enough food, calories, and nutrients on a daily basis is a struggle. I was encouraged to eat anything I could no matter the source, just to get calories down. My dietician, bless her heart, encouraged me to get Lactaid Ice Cream! Smoothies were a daily staple! It was all there…calories, protein, carbs, fat.
Another key, and I know it’s difficult is for him to get ample water. 64+ounces a day if possible. Room temp water seems to be easiest to drink in larger amounts.
Keep me posted, ok? Happy to answer any questions you have on his transplant.
How are you doing? The caregiver bears the brunt of all of this. Sending you a hug!