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DiscussionIron Depletion in Blood related to COVID?
Post-COVID Recovery & COVID-19 | Last Active: Nov 7 7:35am | Replies (1078)Comment receiving replies
Replies to "I have been reading this and would like to share my experience. I have always been..."
I also have chronic leukemia, diagnosed in 2015 by accident when my bowel burst! I was in watch and wait for 7 years and finally started meds July of 2022. In August 2022 I caught Covid since immune system is basically wiped out by meds and went on Paxlovid for Covid for five days and had to stop CLL meds. After that I couldn't take meds anymore so I stopped and my blood levels went almost to normal !!! I feel like they're going back up again so will eventually have to start meds again I'm sure, but want to wait anyway til after the Christmas /New Years Covid boost is past. Do you have a hematologist who specializes in CLL? Very important. It's a whole other ball game. And make sure you are comfortable with the doctor. Many of us go through several before we find one we stay with. (However I feel my oncologist takes better care of me lol- I'm also a breast cancer and thyroid cancer survivor and stroke) Has your husband been tested for leukemia as well? I wish I lived near a major hospital instead of in the boonies where each doctor is in a different group and thus they refuse to talk to each other!! Truly!! Anyway yes. A cbc with differential is best test.
You know, just reread your post. Waiting for labs until you think your iron or other numbers are good, by changing diet or adding supplements, is not really such a good idea and if it's not something you can maintain AFTER the labs, it will not be true results. If you're not feeling well have labs and then do what needs to be done. It might be something else!!
Thank you so much for your information. The bloodwork that was done so far was just the routine one and my primary doctor is sending me to a hematologist and a gastroenterologist. I will be careful not to drink coffee too soon.