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Greetings and Welcome to Mayo Connect. My heart goes out to you for all the procedures, testing and surgeries you have been through only to find that you truly have a Neuroendocrine Carcinoma. You are a brave person and I applaud you for your persistence in seeking answers to your medical conundrum. I have often said that a patient knows their body better than anyone else and when something doesn't feel right, it probably isn't, and you should follow your heart. You have done that, and I count you as proactive, brave and smart! If you do come to Mayo, I highly recommend their care. It is always top notch and patients are free to ask questions and not feel intimidated because they don't know something. I would be happy to share my experience if you like, just let me know. Wishing you all the best in your medical journey. I wish you a better 2023.

Special Blessings,

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Replies to "Greetings and Welcome to Mayo Connect. My heart goes out to you for all the procedures,..."

Thank you for your comforting words. It has been a discouraging journey and over the years have lost so many social contacts because I need to live my life in close proximity to a bathroom. I've given up outdoor activities, dining out, theater but have, in their stead, discovered a love of reading, music and the computer has opened a world of knowledge and travel via the web to places I could never have explored. I am very lucky to be able to continue to work remotely. Friends and neighbors are always welcome to stop by and I have a house full of pets known as dust bunnies. I have learned to speak up to my doctors, and not be so intimidated. I would be very interested in sharing your experiences, thank you.