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Frustrated with the medical establishment
Neuroendocrine Tumors (NETs) | Last Active: Jan 5, 2023 | Replies (9)Comment receiving replies
Greetings and Welcome to Mayo Connect. My heart goes out to you for all the procedures, testing and surgeries you have been through only to find that you truly have a Neuroendocrine Carcinoma. You are a brave person and I applaud you for your persistence in seeking answers to your medical conundrum. I have often said that a patient knows their body better than anyone else and when something doesn't feel right, it probably isn't, and you should follow your heart. You have done that, and I count you as proactive, brave and smart! If you do come to Mayo, I highly recommend their care. It is always top notch and patients are free to ask questions and not feel intimidated because they don't know something. I would be happy to share my experience if you like, just let me know. Wishing you all the best in your medical journey. I wish you a better 2023.
Special Blessings,
Sherry
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Thank you for your comforting words. It has been a discouraging journey and over the years have lost so many social contacts because I need to live my life in close proximity to a bathroom. I've given up outdoor activities, dining out, theater but have, in their stead, discovered a love of reading, music and the computer has opened a world of knowledge and travel via the web to places I could never have explored. I am very lucky to be able to continue to work remotely. Friends and neighbors are always welcome to stop by and I have a house full of pets known as dust bunnies. I have learned to speak up to my doctors, and not be so intimidated. I would be very interested in sharing your experiences, thank you.