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HPV P16 positive cancer

Head & Neck Cancer | Last Active: Mar 26, 2023 | Replies (107)

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@michael3319

Hi Frank, I was diagnosised with HPVp16 cancer in an unknown site on 5 Jan 2017. They BELIEVED it was the soft
tissue under the back of the tongue but not sure. Nonetheless, the treatment plan was agreed upon by both my
UW-Madison,WI medical team and me. I consisted of: fine needle biopsy of 2 lymph nodes in neck, removed of
those 2 nodes as well 39 more that were in that path and 7 weeks/5 days a week of radiation. Found cells in 2 nodes but not the other 39. PLUS, the cancer cells remained in those 2 nodes and had not spread. 5 plus years of exams every 6 months by both oncologist and ENT and all clear as of today. another exam in 2 weeks and hoping I get the all clear response.

I firmly believe that if I hadn't had the nodes removed and tested, I would have tested positive by now because
the radiation focused to an unknown site under my tongue and not the 2 nodes in my lower neck/clavicle area where the nodes were located. Not sure if this helps but hang in there. Journey may be tough but you can do it.
God Bless You & I pray that your 2023 is filled with happiness and a positive recovery!

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Replies to "Hi Frank, I was diagnosised with HPVp16 cancer in an unknown site on 5 Jan 2017...."

Hi right now I am waiting for them to decide to remove the nodes that are swollen and they don’t appear to be in any rush. How long before you had a problem before they removed the nodes ? Where were the positive nodes located were they in the sumandibular region ? Thanks

They took 39 nodes from one side or both sides. Seems like a lot hoe did they decide that ? Is that considered a radical node dissection? How was the pain and recovery after the surgery ? Any lingering effects ?

How were you diagnosed ? How did they know to test or I should say what tests/labs did they take ? I'm having all sorts of issues (past breast, thyroid and CLL leukemia) but my next nodes are the worst. And docs says"oh labs look good. See you in six months " they all just take regular cbcs etc. nothing that might find something else.