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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Dec 18, 2024 | Replies (1519)Comment receiving replies
Hello Justin
Thank you for your comments.
The pains are going on and worsening since 2012. The diagnosis has always been irritable bowl syndrome. But reading the reports of the docs it cannot be that proeminent lymph nodules and 24/7 pains and p-anka 3 time the norm are the result of a irritable bowl syndrome..not to mention that a CT a couple of years ago mentioned the PM. So after struggling for years we found a Dr. that seems to listen. In these years we have tried FOODMAP, putting away dairies, gluten, fructose, histamine.. nothing seems to help. The belly blows up from time to time so much that it hurts only looking at it. And he cannot breath properly without having pain or sitting straight without having pain. But there are no gastro symptoms (gastro and colonoscopy were ok). It s like fighting against a draught of air since years. The last CT reconfirmed the PM again and the proeminent lymph nodules again. So now we should call the doc after 10 days of prednisone but for what we know 'normal' PM cases respond from the first day on? If the prednisone doesn't work, what is next?
Replies to "Hello Justin Thank you for your comments. The pains are going on and worsening since 2012...."
I would add that Presnisone is a common course of action for inflammation. It may take time for the pain to subside. I do not know how long Prednisone is typically used before stopping it. If your husband tolerates it well the inflammation "could" subside...
Maybe other members can offer their experiences.
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Hello Mary, this is @vdouglas. I'm sorry to hear about the issues your husband, and you as well, have had to deal with. Sounds like this has been going on for some time. I do not know what your husbands Actual diagnosis is and can only speak based on my personal experience with MP. Mesenteric Panniculitis is an inflammation of the Mesentery "Organ" and surrounding tissue. All of the symptoms you have mentioned in both threads sound typical based on my experience. I had flank pain when standing and had to sit, then if I sat too long I would have to stand. Relied on pain Meds to help but it seems like you just have to find the one position that feels the best. Bloating is very uncomfortable and painful as well. I only had about 4 weeks or so of non stop pain, two very bad weeks. Pain Meds only slightly helped. Never had a doctor try Anti-inflammatory meds. It was two years before I saw a qualified Doctor. My symptoms subsided prior to my Mayo Clinic visit with Dr. Darrell Pardi.
Your husband has had two CT scans that mention Mesenteric Panniculitis. It is important to get copy's of those scans. Get the Disc of the scans from the radiologist not just the report. These discs can show historical changes in the Mesentery and Lymph system and much more. I would recommend a visit to see Dr.Pardi at the Mayo Clinic in Rochester Mn if at all possible. Prior to acceptance for a visit they will probably want to see your husbands CT Discs. Dr. Pardi is very experienced and can prescribe a course of treatment based on your husbands history. There is no cure I am sorry to say and as you probably already know. The treatments can work but may not. The type of treatment is based on symptoms and history and the progression or regression of the inflammation, even family history. Another constant is that this whole thing can be so overwhelming. Neither of you give up hope!
Best wishes and speedy recovery for your husband,
@vdouglas