← Return to Stage 3 Kidney Disease and Diet: What can I eat?

Discussion

Stage 3 Kidney Disease and Diet: What can I eat?

Kidney & Bladder | Last Active: Aug 26 12:20pm | Replies (800)

Comment receiving replies
@kamama94

@gingerw, hello.

Am having a lot of difficulty finding certain information. I know this is the Kidney and Bladder thread and I do have CKD but I also have gastroparesis and am experiencing many roadblocks to getting detailed information about the latter.

CKD patients need to be careful about grains and so do gastroparesis patients. Everything I've read and been told about gastroparesis says to limit fiber, avoid legumes (except refried beans, of all things, and peanut butter!) as well as nuts and seeds.

Unfortunately, the GI specialists where I live and the nutritionists don't seem to know enough to answer my questions.

1. Most if not all commercial/prepared mustard is made by soaking and grinding mustard seeds into paste then adding vinegar, salt, perhaps some oil and sugar. Since the seeds are broken down into a smooth paste and product labels indicate zero fiber, does anybody know if is it ok for a GP person to use 1/2 tbsp mustard once in awhile?

2. I also have a question about celery seeds, which are extremely tiny. I fail to see how 6 to 8 celery seeds occasionally sprinkled into egg salad or potato salad or soup could possibly contribute to bezoar formation or exacerbate diverticulosis, especially since five or six times that amount (or 1/2 tsp) contains only 0.1 grams of fiber. So, can someone tell me if consuming a few celery seeds now and then are safe?

I did check several sources and Crystal Saltrelli is the only person I found who
indicated a GP patient can try such things sparingly and see if they're tolerated.

As you know, renal diets are in conflict with diabetic diets and with gastroparesis diets, therefore I have to do much compromising on a daily basis and am spending an inordinate amount of time and energy calculating nutritional values and appropriate amounts of limited foods. This is far more challenging than if was for me to create my own ovo-vegetarian renal diet which also fits with a very modified vegetarian (meat-free, low-or-no-dairy) diabetes diet.

Nuts and seeds are ok for vegetarians with diabetes but must be eaten sparingly on a renal diet due to mineral content and supposedly should be avoided on a gastroparesis diet.

Meat substitutes and protein veggies are ok on a vegetarian diet and even on a diabetic diet but should be limited on a gastroparesis diet.

Very frustrating!

Although I need to avoid dairy products, I can't get enough nutrition without supplementing with Boost or Ensure daily, which contain milk!

If you or anyone else knows where I can get real answers to real questions besides the burping (pun intended) of "avoid this" or "limit that" gastro diet, please let me know.

Thanks!

Jump to this post


Replies to "@gingerw, hello. Am having a lot of difficulty finding certain information. I know this is the..."

@kamama94 You have always demonstrated, to me, how seriously you take your health issues, and diet choices! I simply cannot imagine how filled your day is while you examine information and labels. You know this makes you more of an expert in the field than many professionals, right!?

I wish there were simple answers to your questions. For a long time I have struggled somewhat with what to eat to keep me in the best health and in least compromised situations. For me, it comes down to experimenting constantly, as what worked at one time doesn't anymore. Trying out different things, crossing my fingers and hoping there won't be negative reactions.

Crystal Saltelli may have it right when she says to try, and see what we can tolerate. Many will say, "moderation is the key", and my take is to each of us to be an individual, follow what our body says is okay.
Ginger

@kamama94 greetings in the New Year. I’m responding to your post to @gingerw regarding nutrition for gastroparesis. We’ve discussed nutrition for diabetes and CKD in the past. Your cookbook / recipes for those conditions have been wonderful. You are a good cook and are so thorough and thoughtful. Now you have to concern yourself with gastroparesis. I have a history of that too. I was told that it is a complication of diabetes and a type of autonomic neuropathy. I also was told to go with low fiber because of it. I found out it is very challenging to feed the body when there are multiple diseases at play and the various recommendations for each are contradictory. In my case it was in the order of diabetes, gastroparesis, then CKD. It doesn’t really matter because the dilemma is the same. I want to remind you that your CKD was pretty serious to the point of dialysis and you have improved so much. My gastroparesis has improved that I now refer to it as a history. It only flares up occasionally. Improvement is possible. Last summer I had a trip to ER and ended up with a 4th diagnosis, Diverticulitis! The dietary recommendation for that is high fiber (but not nuts & seeds). It is pretty much the exact opposite of what is necessary for gastroparesis! My primary doc said “This will be touch and go for awhile”. I asked him what he meant and he said it will take time with ups and downs to figure out what works for me. Don’t change everything for diverticulitis to the detriment of the gastroparesis. Don’t do anything drastic. Make small changes to find out what works. I don’t know if this is helpful or not but please keep trying. You’ve done exceptionally well in the past. My hope and prayer for you is that you can learn to deal with this newer challenge. Blessings to you in the New Year.