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Bones, Joints & Muscles | Last Active: Feb 3, 2023 | Replies (21)
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Thanks. I do know about all that. EDS is a connective tissue disorder. There are also many of us who have not had issues until were are older. hEDS is not well known among the medical profession, and I found it better to just deal with the issues as "connective tissue disorder", finding solutions for controlling the places that hyper-mobility shows up, It can be minimized and kept under control. Prolotherapy for SI attached ligaments stopped my subluxing hip. Now I have movements to keep the SI Joint in line .... knee to the chest, gently stretching the illiopsoas and the hamstrings, etc.
Hope you have found ways too!
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That’s wonderful and yes boy do I get that it’s not recognized. I have worn the shirts and put magnets on my car and have bracelets and am constantly quizzing doctors! The Zebra has become more well known and I do my little part. My way is to have each joint corrected . If I had known all that was ahead of me I would have moved south as a young woman and worked out daily in my own salt water pool. I waited too long and circumstances kept me in the north where the cold did a lot of damage!