sacroiliitis

Hi ! I did google about E-D syndrome. I think I am hypermobile, but that is the only symptom I have from the list of symptoms on the Mayo information page. My physical therapist says she is hypermobile as well, so I don't think it is so uncommon.

As far as I know my hips are not uneven. My instability in my si joint may be caused by a condition I was born with. On the right side, my L5 vertebrae is heavier and has an additional piece that is attached to the sacrum, kind of creating an additional little joint there. This may make my si joint have some instability and also create problems higher up in the back.

I hope that you are working with a good physical therapist. My sister had a very bad si joint problem that was misdiagnosed as a low back problem. When she finally found a good PT she was on the road to recovery, though it took an additional year after that--going every week--to make a full recovery.

Thanks again for your reply and good luck with your appointment on Monday!

I am having similar pains and issuses and the doctors are clueless at this point i am going to see an RA next week.I have have cervical surgery,i have 6 rods in my neck area.Any insight would be helpful and i will do the same for you

Hello,

It turned out that I have a small bulging disk at L4, L5 and that is the source of my pain. The pain I was having was due tat SI Joint was referred pain from low back. A MRI helped to pin down this diagnosis. Btw, one thing my physical therapist did was to have me wear an SI Joint belt. You can ask you PT about this. It helps stabilize the SI Joint and lower back, and this helped my low back and si joint heal and stabilize.

So I would hope that you get your dr to give you an MRI and then go from there.
Good luck!

Minimal help that did not last more than a few months. Good luck.

I too have sacroilitits and injections in the SI joints help

Does anyone have IBM?

Arline

Good Morning Arline - You can find other members dealing with Inclusion Body Myositis here:
https://connect.mayoclinic.org/discussion/inclusion-body-myositis
Sue

I dont know if I strained something in my back or what. i have degenerative disc disease, osteo arthritis, etc but it mostly only bothers me if I stand or walk for a certain amount of time. I am also told my hips are out of whack. Up until recently, a week ago, I was able to tolerate and livc with all this. SI included. I threw something the other night with extra gusto and my shoulder and my hip hurt. The shoulder is fine now but in the morning I get these stabbing pains in my hip/side and sometimes shoot across my back. I am hoping this is just a strained muscle. I was doing good until this morning and the severe pain has set in again. I was up walking during the night with no trouble but getting out of bed and to my chair was pure pain. This seems to ease up during the day and I am mostly sitting. I did notice yesterday I bent over to pick up a few things and I also exerted myself by pushing on something. Does this sound like a strained muscle or spinal problem? The heating pad in the morning gets me going so I can at least function. I am 75 and have survived one back surgery, two different cancers and now this.....help!!

Sounds like what I went through with a hypermobile SI Joint. My physical therapist said my hips were in a different place every week and he would realign them. Six Doctors and several years later I found Regenerative Medicine and prolotherapy. My joint's ability to move too far actually got bad enough to cause a 'not quite' dislocation, called subluxion, with a certain leg movement.
When the joint moves too far it actually stretches the attached ligaments. Prolotherapy can treat the 'lax' ligament, allowing it to work again. Mine snapped back like a rubber band 10 days after treatment, healing itself. The National Spine and Pain Center website has information.
Finally, a bad hip operation and inactivity started the hypermobility again, but I keep it in line by pulling a knee to the chest and gently stretching the hamstring and the illioposis, both of which seem to get overworked.
Hope you can find your answer.

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